Community
Years of recurrent infections before anyone names the cause.
Common Variable Immunodeficiency means the body makes too few working antibodies, leaving people prone to frequent, recurrent infections, often for years before low antibody levels point to the real cause.
~1 in 25,000
estimated to live with CVID
4-8 yrs
typical time to diagnosis
Lifelong
immunoglobulin replacement, the standard care
Why this community
A community that has waited too long.
CVID is the most common symptomatic primary immunodeficiency, yet it is easily missed. Recurrent sinus, chest, and gut infections get treated one at a time, and many people wait years, commonly four to eight, before anyone connects them to a failing immune system.
Rareix gives the CVID community a modern home: a place to connect with others who live with immunoglobulin replacement and its complications, find clinicians who recognise primary immunodeficiency, and keep up with the research.
What you get
Built around how this community actually lives.
Find people who understand
Connect with others living with recurrent infections, immunoglobulin replacement (IVIG and SCIG), and the autoimmune complications that often come with CVID.
Find immunology specialists
Reach clinical immunologists and centres who recognise primary immunodeficiency, instead of treating each infection in isolation.
Stay ahead of the research
Live matching to relevant studies on ClinicalTrials.gov, and alerts when something new opens.
Founding members
Join the CVID community.
Early access, a founding badge, and real input into what we build. Free, forever.
We will never sell your data. Read our data charter.