Find a specialist who gets it.

Rare disease patients shouldn't have to explain their condition to doctors who've never heard of it. We're building a verified directory of specialists and centres who know these conditions.

We're building this directory now. Are you, or do you know, a rare-disease-aware specialist? Help us seed it below.

EDS-aware clinics

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United States · United Kingdom

Ehlers-DanlosHypermobility

Neuromuscular centres

Duchenne care & trial sites

United States · United Kingdom

Duchenne Muscular Dystrophy

For clinicians

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Reach engaged, motivated rare disease patients actively looking for expert care. Listings are free during launch and verified before they go live.