Privacy Policy
Last updated: launch draft.
This is a plain-language launch draft for an early-stage waitlist site that collects contact details and optional stories. It must be reviewed and finalised by a health-tech solicitor before the full patient platform (profiles, symptom journals) goes live. See our data charter for our promises in plain English.
What we collect
On this site we collect only what you give us: your email and optional name/role/ country when you join the founding community; your email when you save a trial alert; your company details when you make a partner enquiry; and any diagnosis story you choose to share (with your explicit consent).
What we don't do
We do not sell your identifiable data. We do not share your data with insurers. We do not run third-party advertising trackers on patient pages.
How we use it
To contact you about Rareix, send the alerts you asked for, respond to enquiries, and improve what we build. Trial searches are sent to the public ClinicalTrials.gov API; we don't attach your identity to them.
Your rights
You can ask us to show, correct, or delete your data, or unsubscribe, at any time. Email privacy@rareix.com. Under GDPR/UK GDPR and applicable US law you have rights over your personal data; we honour them.
Data storage & security
Data is stored with our infrastructure providers (e.g. Supabase) and protected with access controls and encryption. As we add sensitive health features we will move to HIPAA-eligible infrastructure with full safeguards.
Contact
Questions? Email privacy@rareix.com.