Community
The science is moving fast. Families shouldn't have to chase it.
Duchenne sits at the heart of a gene-therapy revolution, dozens of trials are recruiting right now. Rareix helps families find the ones they qualify for, and stay informed as new options open.
~1 in 5,000
boys born with Duchenne
60+
trials recruiting right now
24/7
alerts when new trials open
Why this community
A community that has waited too long.
Duchenne is relentless and time-sensitive. Parents and carers carry the search, the paperwork, and the hope, often while the most promising trials have narrow windows tied to age and ambulation.
Rareix puts caregivers first, with full accounts to manage everything on a child's behalf, decode trials without the jargon, and never find out about an option too late.
What you get
Built around how this community actually lives.
Trials, decoded
Gene therapy, exon-skipping, natural-history studies, matched to your child and explained without the jargon.
New-trial alerts
The pipeline moves fast. We email you the moment a new trial starts recruiting, so you never find out too late.
A community of families
Connect with other Duchenne families navigating the same decisions, fears, and milestones.
Founding members
Join the DMD community.
Early access, a founding badge, and real input into what we build. Free, forever.
We will never sell your data. Read our data charter.